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Thursday, May 1, 2008

One more to go

Sorry I have not updated the blog lately. There are no real big or exciting updates. I received chemo last Thursday and feel like crap. I also received the Neulasta shot and that is really causing some major pain in my bones.

The nurses are still having a hard time getting the Dacarbazine to go in without pain. We just cannot get the ratio right the last two chemo sessions. They had to put it in really slow which just made for a really long day. By the time I got home my nausea was the worst it had ever been. I was constantly feeling like I was going to vomit but nothing would come out. Even with the prescription Ativan nothing helped relieve the nausea.

I’ve been receiving the Neulasta shot after each treatment now and that is really taking a toll on me. The pain kicks in about 4 days later and lasts about 4 days. It keeps me up at night and just makes daily life really painful.

The weakness and fatigue I’ve been having lately is just horrible. Especially this past week as I couldn’t do much besides lay in bed. Doing something miniscule as walking up the stairs is so draining, my heart starts beating really fast and I start breathing heavily. It’s a little scary to deal with but I just lay down right after these weird spells and it goes away after a few minutes.

I’ve finally been discharged by the home care nurse only due to the fact that my insurance will not cover any more visits. This is ok with me as my hole in the leg has healed up just fine. The hole in my chest is finally healing but it is still pretty big. Now I have to change my bandages and redo the packing every other day. This is just a bizarre experience to have to do on your own. Not only is painful but it is odd to have to take care of such a big wound like this on my own. I used to always look away when the nurses would do this and now I am forced to actually look at it. Doing this really plays mind games with me. By the time I am done I am just a bit freaked out. The pain is still pretty bad but I just chalk it up to the fact that I have a 2inch hole in my chest and a 2inch hole in your chest is going to hurt.

I’m continuing to lose my body hair and the hair on my head is now growing back really slow. I used to have to shave my head at least twice a week. Now I can go almost two weeks before it really becomes noticeable. The whole hair thing is just strange. Even my 8 year old niece came up to me the other day and said “Uncle Jason, what happened to your eye lashes?” I found it very amusing! Hey like I said before at least it is not painful.

I am glad that I am only dealing with these few things and nothing major. I’m hoping to get back to normal this weekend. Then one more chemo session left.

My doctor said he will give me an entire month off before I start radiation which is great. It will give me some time to get some strength back. Unfortunately he also said it will take a few months before I get an immune system back. So I still need to stay extra cautious and stay germ free.

9 comments:

Anonymous said...

HEY JASON, SORRY TO HEAR THAT THIS IS TAKING A TOLL ON YOU. I WISH IT WAS AS EASY AS WAVING A MAGIC WAND, BATTABING BATTABANG YOU HEALED. YOU'VE COME THIS FAR HANG IN THERE COUSIN. JUST REMEMBER YOU HAVE YOUR GOOD LOOKEN BOYS TO LIVE FOR. AND, THE FAMILY THAT LOVES AND CARES SO MUCH. IT BREAKS MY HEART THAT YOU ARE SO FAR AWAY AND I CANT REACH OUT TO HELP YOU. YOU HANG IN THERE JASON. JAMIE GIVES HER LOVE AND PRAYERS.

LOVE YOU VERY MUCH, JAXX/JAMIE/CRAZY BRENT AND HIS RUG RATS: ASHLEY & BRADLEY

Roger & Maria said...

Jason:

Your almost there. We with you on this. It'll be over before you know it. Hope to see you soon.

Roger

Anonymous said...

Jay,

ONE MORE!!! Keep up the stregnth, I am amazed at how strong you have been. I don't think I could handle this as well if I were in your shoes. Hopefully you will be able to come down for the 02 show. We are all counting the days 'til this is all over. You are a tough dude!
Love,
JR

Unknown said...

Hey brotha,
It has been a long road I am sure to get to this point. But your high spirits have been a real inspiration, I've never known you to be down for long and it is one of your best qualities. You are a very positive guy and amaze us all with how you remain in good spirits.

I am very glad to hear you are getting a month off and I hope you make the 02 show. We are all counting the days for this to be over. Bfest wasn't the same without you, but we all look forward to next year and many more bimmer meets with you. God bless and I hope to see you soon Jay.

One Love,
Joe

Anonymous said...

Hey babe...
Like you tell the boys before soccer practice/games...
Get fired up, Get fired up Get fired up!!!
Practice what you preach, babe.
You're almost done!!
Take Thursday head on, and with a vengeance!!
Love you,
Boo

Melissa V. Castaneda said...

J Victor,

Almost done!! A little more to go. I know it's easier said than done but you are doing GREAT!! I've always known you were an amazing guy but WOW!! Your strength is AMAZING! I love you dearly and can't wait to see you done with this scary, painful, long journey. Stay STRONG and GERM FREE!!!

All my love,

Misha

Anonymous said...

Hey you guys,
May 8th seemed so far away back then, I remember counting the weeks out! You blow me away,just having to deal with the on going pain, still keeping on with the family and the boys occupied with sports, running 4-5 days a week. You two just rolling with your day to day! You guys could have stopped everything and you didn't. What a good example you are for the boys and the rest of us! WE love ya! Pam, David and the family

Anonymous said...

Hey Jason...This is Jeremy from the gym in Pleasanton. Live your life in the words of the late Tupac Shukar...KEEP YOUR HEAD UP!
My prayers are w/ you and your family.

Anonymous said...

Hey jason, thinking of you cousin, how ya doing today?. got an em from Jr. they have your dads web site set up,nice-check it out. I am sure he sent you an em. if not-autoanaylsts2.com. how are the boys?Give becky a happy moms day hug from me. Jamie can over yesterday late as usual, but made my moms day special. Hope you are have a day feeling better. Much love hugs & kisses. jaxx~