Our PDX

Tuesday, April 8, 2008

Things went pretty well after this last chemo (on 3/26). We were even able to get the Dacarbazine into my arm without causing any pain. I think we finally found the best ratio of saline and Dacarbazine so that it is diluted enough to not cause pain. I had the usual side effects up until this past Saturday (4/5) when I started to feel better. I had the same sick feeling the first night and just a little bit of nausea. I did receive the Neulasta shot again so that of course caused some uncomfortable bone aches. I was very fatigued but had no problems with loss of taste or appetite and no flu like symptoms.

Some strange things that I have noticed but aren’t causing any pain are; dry skin, loss of body hair and purple finger nails. I showed my doctor my nails and he said that is perfectly normal. Your finger nails are fast growing cells so the chemo is killing those cells. Once chemo stops then over time they will grow back and look normal again.

The hole in my leg is healing up great. The nurse is still packing it every other day but it is so much better. It no longer hurts and the most pain I have to deal with is when they pull off all the medical tape that is covering it.

Unfortunately, the hole in my chest is not healing as fast. Friday was the first time that the nurse found granulation tissue growing inside, which means the hole has finally decided to start healing. The problem is now when they go to pack it there may be some nerves exposed as the pain is excruciating.

They are sending out a wound care specialist this week to take a look at it so they can try to determine exactly why it is causing pain. Then on Friday I am going back to the hospital to have the doctor look it again. They believe it is either the nerves growing and being exposed or that I am having a reaction to the Aquacel that they use to pack the hole.

The pain is there every day and still wakes me up at all hours of the night. Sleeping seems to be impossible because no matter what position I lay it feels like too much pressure for my chest. There is still some swelling but at least the bruising from the internal bleeding is almost gone.

I have completed my antiobiotics for the staph infection and so far so good. I should know here in a couple of days if the infection comes back -keeping my fingers crossed!!

This Thursday (4/10) I go in for my sixth treatment –which means if all goes well and stays on schedule I will have two left, with the last one scheduled for May 8th. Then on to radiation!

7 comments:

rrowley said...

Hi Jay,
I finally got my computer back at home so I could log on! I'm excited that you only have two more sessions to go. We are praying that the staph infection does not come back and that the hole in your chest will finally heal. I heard from Pam that your mom is visiting! I hope you are able to get some rest while she is there. Take care, Love Ronnie

Anonymous said...

HI JASON,

SO GLAD TO HEAR ABOUT YOU'RE PROGRESS,ONCE YOU GET OVER THIS YOU BE ABLE TO CONQUER ANYTHING. I'LL PRAY FOR YOU EVERYDAY THAT ALL GOES WELL,AND THAT YOU WILL BE HEALED. EVERYONE HERE IS DOING JUST FINE.GIVE MY LOVE TO THE BOYS AND BECKY. TAKE CARE, GOD BLESS YOU.

LOVE YA, JAXX ~ CASTRO VALLEY

Roger & Maria said...

Hi Jason:
Glad to see you are doing well. Talked to Anil the other day and he said things are coming along. Seems your better than halfway through this thing. It's all a learning experience that will come into good use when the time comes. You'll see. So, where's the victory party going to be? Let me know. I don't want to be late.
Roger

Anonymous said...

Hi Jason.
write your family from Honduras every day I pray to God for your recuperation,your cousine

Monchito

Anonymous said...

hey jay! good to hear things are going well! stay strong bro!!

Anonymous said...

Hey Jay

Just heard about this... I read all of the postings. If there is anything that I can do, just give me a shout (even if I am 3K miles away). I'm thinking of ya brother... Keep the positive outlook!

Bob from St. Clares

Anonymous said...

Hey Jay,
Hope you're feeling better today; I bet you can't believe that 4 months has passed already and soon you will be having your last chemo treatment. As always, you are in our prayers every day. Stay strong. We'll be up to visit everyone in July!! Love Ronnie